Contact Name: Sarah Donoghue
Contact Phone: 4848796160
Dear Guy's Racing Club,
I'm helping to coordinate a charity cycling event that benefits the Friedreich's Ataxia Research Alliance (FARA).
Please post this information on your ride calendar/events page to let your community know about our ride.
Event: rideATAXIA Philly
Date: Sunday, October 14th, 2018
For: Friedreich's Ataxia Research Alliance (FARA). A 501(c)(3), non-profit organization dedicated to funding research to cure Friedreich’s Ataxia, a debilitating, life-shortening, degenerative neuromuscular disorder with no treatment or cure.
Location: Montgomery County Community College Blue Bell, PA
Brief Description: 4, 8, 25, and 50 mile route options. Fully stocked rest stops, strong SAG support, and delicious post ride food prepared by Outback Steakhouse, Carrabba’s Italian Grill and Bonefish Grill. Fundraising benefits the Friedreich’s Ataxia Research Alliance (FARA). Fundraising is not required but strongly encouraged. For details including route maps and registration visit: rideATAXIA.org/philly
Registration Fee: $45 Regular Priced Cyclist (No Fundraising Minimum) or $25 Reduced Price Cyclist (With $200 Fundraising Minimum); increases by $5 after 9/14/2018 and $10 for same day registration. Registration fee includes ride, lunch, and event t-shirt.
Friedreich's ataxia (FA) is a debilitating multi-system disease and the most common type of inherited ataxia. 1 in 100 people are carriers of the FA gene. What begins as difficulty with balance and coordination progresses over a short period of time to a life altering loss of mobility, energy, speech and hearing, robbing children and young adults of the ability to live active lives. FA also presents serious risk of diabetes and life shortening cardiac disease. As of today, there is no treatment or cure. Fundraising to support FA research is strongly encouraged, but not required.
Friedreich's Ataxia Research Alliance (FARA)
TOGETHER WE WILL CURE FA!